Teen battling rare chronic pain condition

Teen Battling A Rare Complex Pain Syndrone

WHEATFIELD, N.Y. -  A local teenager is battling a rare syndrome that can be very painful.
It's known as CRPS which stands for Complex Regional Pain Syndrome. There are fewer than 200,000 U.S. cases per year.

Jacob Crocker, 17, was hoping to graduate from high school this year and possibly earn a scholarship to play soccer in college. He won't graduate because he's spent months out of school for medical care.

Last year while playing Frisbee at Beaver Island State Park, Jacob said he "stepped on nails and wood and it went all up in my foot. I went to the hospital for a total of 14-days."

An infection set up. "I developed an autoimmune syndrome that causes constant, excruciating pain."

A short surgery lasted two hours.

The family couldn't find anyone in the Western New York area to treat him for CRPS. There are only six facilities in the nation that specialize in this syndrome, according to Jacob's mother Samantha.

"We tried going to New Jersey, and they wanted $110,000 to walk into the door," she said. Jacob was eventually treated in Nebraska.

To battle this rare condition, Jacob fights pain with painful exercise. He works out everyday.  If he has a flare up, he exercises that part of the body to stimulate the senses. "I had a flare up in my arm a couple days ago so I made sure I lifted weights in my left arm specifically, push-ups."

Physical activity includes sometimes running 10-miles, even if his foot is in pain because it works to dull the intense chronic pain.

A benefit will be held on Saturday, June 24, at Randall Baptist Church Pavilon and Youth Center from 2-6 p.m.

There will be a large amount of basket raffles, a meat auction and food.

Here's a link for pre-sale tickets. $20/adult $10/under 10

There is a gofundme account set up to help with medical expenses.

"Coming out and supporting Jake and learning about this puts you in the mindset that anything can happen to any of us at any time," said his mother.

Click here to learn more about CRPS and the telltale signs and symptoms.

© 2017 WGRZ-TV


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